HIST1H1E Foundation is a parent-run organization dedicated to furthering research on the HIST1H1E gene and providing support and education to the small, but growing community of individuals and families impacted by a HIST1H1E diagnosis.
Our objectives are to:
FOSTER communication, offer encouragement and provide resources to families.
PARTNER with researchers through fundraising and grants to develop potential treatments and gain a better understanding of a HIST1H1E diagnosis.
FACILITATE the development of an international patient registry program.
RAISE the profile of this extremely rare diagnosis through the creation of a public awareness campaign.