HIST1H1E Foundation is a parent-run organization dedicated to furthering research on the HIST1H1E gene and providing support and education to the small, but growing community of individuals and families impacted by a HIST1H1E diagnosis.

Our objectives are to:

  • FOSTER communication, offer encouragement and provide resources to families.

  • PARTNER with researchers through fundraising and grants to develop potential treatments and gain a better understanding of a HIST1H1E diagnosis.

  • FACILITATE the development of an international patient registry program.

  • RAISE the profile of this extremely rare diagnosis through the creation of a public awareness campaign.

Disclaimer: The information provided on this website is to inform and help parents cope with the sudden, unexpected change in their life due to a HIST1H1E diagnosis. The information contained on this site is not intended to replace information you have received from doctors or other health professionals.We are not doctors, we are parents of children diagnosed with a HIST1H1E change.

HIST1H1E Foundation is recognized as a 501(c)3 non-profit corporation. EIN 84-371036 | Privacy Policy

The trademarks, logos, and service marks displayed on this website, including the HIST1H1E Foundation logo, are the property of HIST1H1E Foundation.

Copyright HIST1H1E Foundation 2021 All Rights Reserved