FAMILY ADVISORY COMMITTEE
The HIST1H1E Foundation Family Advisory Committee (FAC) is made up of a small group of dedicated parents of HIST1H1E children to further our mission to foster communication, offer encouragement and provide resources to families.
Over time, we hope to add a number of parent support representatives to provide ad hoc assistance within their local region for the facilitation of local meet ups and welcoming new families in the area. We hope to hold meetings via Zoom, approximately every 12 weeks.
If you have any suggestions for the FAC or would like to join the group, please email info@hist1h1esyndrome.com.
Australia
Bec Kitchin - jeffrey_rebecca@bigpond.com
Europe
Tine Aertgeerts - Email: tine_aertgeerts@hotmail.com
UK/Ireland
Tracy Chapman - Email: tracy.chapman15@yahoo.co.uk
United States
Eastern States
Julie Nikkel - Email: julie.c.nikkel@gmail.com
Central States
Georgeanne Ford - Email: ganneford@gmail.com
Western States
Kelsey Pitts - Email: kelseylpitts@gmail.com